Tuesday, April 28, 2009

Receptive and Expressive Language Delay

I wrote here back in the fall that Lily's kindergarten teacher believed that she had something called a receptive and expressive language delay. I agreed with that assessment and was happy to have a name for what I had noticed about Lily. I feel that I have a similar way of perceiving the world and that I completely understand. My perception is that for Lily and sometimes for me the world of language is difficult. For example depending on your skills I would ask, Have you ever listened to a poem and known every word spoken individually but had no idea what was said? But, listened a few more times took some time to concentrate and finally started to understand what the poem was saying. Or the same can be asked about an algebra problem or geometry. Right we have all been in situations where we had to really focus to understand the concepts being told. Where any noise in the room or stray thought could distract us and make the comprehension diminish. This is how Lily feels all the time. While she is capable of hearing and understanding every word spoken to her is difficult to get into her brain, it takes a lot of effort on her part.

The plan was for Lily's teacher to have the speech therapist evaluate Lily. Which happened and the speech therapist said she completely agreed with the teacher because Lily was asked questions and her answers did not match what was being asked. Like she would be asked what she was doing and she would answer about the weather. The teacher said that this would be passed on to the lead teacher who would schedule an appointment for the teacher, parent, speech therapist, and lead teacher to get together and map out a plan.

I never heard back. Finally when I got the first report card after half the year was over I scheduled a conference with the teacher. Meanwhile, Lily was doing great in school and on the standardized tests. I talked to the teacher and she said that Lily is not eligible to meet with the speech therapist or head teacher or to get a plan because her receptive language delay is not interfering with her academically. She then went on to tell me all kinds of things that have happened that indicate to her that Lily is still having the same difficulties in class.

I was upset to say the least. I feel like my kid is being punished because I am an involved parent who works with her at home. I feel that she should be allowed to have the highly paid, highly educated experts take a look at her situation and give us some guidance. I am doing my best but some expertise might make a huge difference in Lily's development. I am not asking for her to be pulled out of class on a daily basis and privately tutored, I am asking for a meeting, for some input. But, no at Lily's school you have to be failing to be eligible for help. Even if you have a learning disability and there are people in the building specially trained in this stuff they wont even speak to me unless she is failing. Am I the only one who thinks this is a bunch of crap?

Lily's teacher is great, most of the time. She tells me when Lily is struggling with something and I work with her at home. She often times doesn't understand the instructions and I have to explain it at home. I guess I am finding a way to get into her head because so far I have been able to help her understand things that she fails to understand at school. One time her teacher pulled her ear and told her to use her ears and listen. Which upsets me because that seems unfair when it is so much harder for Lily to listen than it is for the other children. I called her and spoke to her about the ear thing, Lily says her ear was pulled the teacher said it was touched, either way I didn't like it. I didn't say that but having made the phone call meant it didn't happen again.

Lily's school work often comes home with the words, follow directions or listen to your directions written on the paper. Lily asked me one time if it was ok if she tears up those papers and throws them away. I said yes. We go over the directions and recreate the page and she does it the way the teacher wanted but the paper with the mean words Lily tears it up. She then wads it up and then we take turns stomping on the paper and throw it away. Lily likes that. She hates being corrected. She gets corrected all the time because she mostly doesn't hear the instructions. So, I let her take out her frustrations at home.

So, why is Lily doing so well academically and on the standardized tests if she has a receptive and expressive language delay? Because she is brilliant? Just kidding. She really has a strong desire to do well. She is very motivated. I am not really sure that I instilled that motivation in her. I encourage that motivation and reward that motivation with a lot of praise but she has that in her. IF a child doesn't have the internal motivation to want to do well in school I don't know how you would put it there.

Working with her I try to be there for her, to encourage and to explain things in non-verbal ways as much as possible. I let her explain it back to me. I take the time to listen to her. I think that hearing how her mind is working helps me to be able to fit the missing pieces into her head in a way that she can understand. I have her draw me pictures of the classroom or playground when she is trying to explain things to me.

The number one most important piece of advice I can give is to focus on the strengths. If a child loves something and is interested in something focus almost all the attention on that and just do enough to get by on the areas where they are struggling. I know that sounds exactly the opposite but it facilitates the love of learning and their interests change. It also helps to not build up a hate or frustration.

Any receptive and expressive language advice out there?

7 comments:

Kimberly said...

I would go to the principal and request that she get tested. If that does not work go to your pediatrician talk to her for a referral to get tested. The problem that I see is that if she does indeed have this problem of not comprehending what is asked of her that eventually it will become a bigger problem and start to affect her academically. Teachers don't have time to give the individual instruction to her that she needs, the one on one, especially as she gets older. Which is unfortunate but that is how it is in school. I would do everything I could to insist that she get the help she needs, NOW!

meno said...

It's so frustrating when people are following the rules, but they are still not right.

I have no advice, but i advise you to keep on trying. And it sounds like you are doing great work with Lily.

Sheila said...

Kimberly's advice is right on. Now is the time to jump on whatever learning issue is there and work on it. It all sounds so familiar. My younger son had auditory processing problems. It was a long drawn out process of meetings, evaluations and specialists.

How good are special services in your area? Ours were pretty good. At one point my son had speech, occupational, and social services. Attention was an issue too. Attention issues should not be diagnosed by teachers however.

He hated to be pulled out of class to meet with these specialists and by fourth grade, he was doing well enough to scrap the school IEP. In the summers we had him tutored for math and today he is a college student.

I warn you though. The school nurse once told us that we should not have dreams of college for him and I wanted to slap her. Never underestimate the power and motivation Lily has to compensate.

luckyzmom said...

You are doing a fabulous job. Our oldest flew through school. Our youngest struggled and we struggled with him.

A quote I once saw somewhere made a huge impression on me, "If a child has not learned, he has not been taught."

Lynanne said...

Keep making noise about this. You might want to do some reading on auditory processing disorders and how they can affect learning. Summarize this information before you meet with the school again. You should be able to make some pretty convincing arguments as to why the matter needs further attention.

To say Lily's doing fine because she can do well on a written, standardized achievement test is wrong on so many levels. She may not have difficulty with leaning material from written work, but how much more of the academic day is spoken? A key to success in school and in life is being able to effectively communicate. If she doesn't effectively process what she is hearing, how can she learn through non-written methods?

I agree with the others that if the school doesn't bend, you might want to ask your pediatrician for a referral for a full, unbiased evaluation. If a diagnosis is made, the school has to make appropriate accomodations.

Red said...

i am afraid that we will be where you are in 2010 when my son starts school. we had him evaluated today and were told he had an expressive language delay and a somewhat of a receptive delay. he is a computer whiz. has been since he was 2.5 yrs. he began reading at 2 and now at age 4 he reads better then an average 7 year old. he enjoys doing workbooks from preschool level activities to 1st grade. he'll sit and do them for hours. he reads the directions himself. he read 2 books for the therapist today and she later told my husband he probably doesnt comprehend what he reads. uh, wrong!! he reads and answers questions about the story or activity out loud. she got a little snotty about that. i hate the word average!!! i hate milestone charts. funny how these milestones change over the years. seems they expect more and more. what is average really? he writes... he talks quite a bit at home but not at school or my husbands fam??? he is brilliant!!! your daughter is too! it is ok to admit it. lol the therapist is supposed to call us back to discuss sessions. it is private. a 30 min session is $77 and bcbs does not cover it. so, 1 time a week for 30 min. is over $300 a month. more then we can comfortable afford. there is no way we can do more than 1 time a week. at the same time i see little that she can do in 30 minutes 1 time or even 2 times... i already work with him. i know how to. maybe she can infrm me further... the net is full of therapy skills. i am a stay at home mom and i cant see why i cant do the brunt of his therapy. he will go to preschool 5 days a week for 3 hrs and when he gets home we have 6 hours before bed... so, that is free. he has become so talkative since last oct when he started preschool at just 3 times a week. i mean strides!!! we have 13 months until kindergarten. i have considered homeschooling him at least until it is time for 1st grade, ding homeschool group outings, and maybe even a 5 yr old preschool program for late bday kids. that was he will likely start 1st grade with his peers and not turn 7 in kindergarten. this is all IFFFFF he is still having issues after 13 months. today at his evaluation she told me he scored low on things i know he can do. like asking for help. i hear help alllll day to the point that my ears could bleed. lol his vocab was 109/115 so she said it was great. but he could n ot tell her what that a pic of a suitcase was a suitcase... he is a smart kids. after a while if he feels tested he starts to question himself... even over "what do you want to drink" he can express that, but after being grilled for 2 hours he starts to wonder if there is a wrong answer. i would love to talk more with you about this.

June Hallowell said...

I just read you note and was writing a letter to my sons new teachers and though I would share it with you. You note really hit home.


Hello, I had briefly spoke to you regarding my son Mason at the open house. I have tried to copy and paste a few articles about expressive and receptive delay but many of them were copy right locked so I just attached one web site below. If you don't mind I think it would be insightful for you just to do a google search about expressive and receptive delay and read what you can find. In years past I have given the teachers a folder of papers that I received from children's hospital but not all of them have been returned to me so I don't have many to pass along. I have teetered with putting Mason in some special ed classes but as you can see he does OK in the regular classes, he just needs a little more guidance and patience. As you know kids are very fragile and it is very upsetting when a teacher makes a verbal statement that makes Mason feel stupid. He is very self conscious about his learning disorder. For example last year the class was doing some group projects and the teacher said that she was going to put the three slackers together (my son and two somewhat delinquent kids) for the project. I would hope that none of you would say anything so inappropriate but I think she said it to make the kids realize she felt they weren't trying as hard as they could and that maybe no one wanted to be their partner because of this. It was a very tearful day after school that day for Mason. He does not choose to be slow (as they would have called it years ago) and does want to do well. I just do not want anyone to think he is not listening and not following directions because he doesn't care. Believe me following directions is the hardest part of what he has. It's like he hears the words but does not process it IE receptive delay. As far as the expressive delay he sometimes tells me things that I have no idea what he is talking about. He will just start a conversation in the middle and I,m not sure what we are even talking about. I'm sure you may be thinking, this sounds like a lot of kids but I assure you it is worse than you can imaging on a daily basis. I noticed that he works a lot slower than the other kids on class work and brings a lot more work home to be finished that the average and I do not mind helping him for as long as it takes each night. The problem is in years past is that he has no idea what he is suppose to do or what the assignment was. So, I would like (I'm guessing the homeroom teacher would be best for this) the teacher to make sure that he has written every thing in his assignment book even if it was class work that he may not have done and sign it so I know he has everything. He quite often writes down the "homework" that is on the board but forgets about his classwork that most of the kids finished in class. One last thing I would like to add, and I really don't know what to do about this. He is notorious for doing the work and not turning it in because he is frazzled and cannot find it or misplaced it. I appreciate you listening as I have rambled on. If you are not finding much info on the internet let me know and I can send you what I have. Thank you and I truly think this is going to be a great year. You all seem like very caring women, and I really mean that.



This web site is more for younger kids but I will tell you it fits Mason to a T when he was that age. Everything listed was what we have experienced.

http://www.brighttots.com/receptive_expressive_language_disorder